Category Archives: Healthcare

Strangely enough, everyone but me is an expert on diabetes

If you’ve been reading my blog for some time, you know about my whole adventure with being a diabetic. For a number of years, I lived on the edge of the problem by actually going out of my way to change my lifestyle so that what I ate was copacetic with what I needed. I completely changed my eating habits to compensate for this, and as a result, I’ve had to be very careful about what I put into my body.

Having said that, no matter how much work you do at this sort of thing, there are so-called “experts” all around me who are convinced that because they saw a TV show once, knew some guy, or just happened to hear something on the news once, they know more than someone who lives through it on a day to day basis. When I first started dealing with the problem, one of the first things I did was switch from regular soda to diet soda (or pop). This started the “you know that diet soda is just as bad as regular soda, right?” commentaries. Those ranged from the totally stupid people (“just because it’s diet doesn’t mean it doesn’t have calories”) to the New Age stupid (“the chemicals in diet soda are worse for you than if you were just imbibing regular cubes of sugar”). And there’s no shutting them up either. Go to the fridge to grab a diet soda, and you’re guaranteed a five minute screed on all things bad about diet soda. Tell them to stop lecturing you, and they do it anyway, because they’re convinced they’re doing it “for your own good”. One day, I was actually lectured by a woman who felt that diet soda would one day kill me. She would have continued the lecture, but she had to take a break and go outside because it had been fifteen minutes since she last had a cigarette.

I went to work out a few weeks ago, and someone told me that my choice of exercises (the exercise bike) was a poor choice for someone with diabetes because it didn’t affect the cardiovascular system as well as some other exercise he named. The fact that I went from sitting in front of the television set to actually working out should have been an indication that criticism wasn’t necessary, but strangely enough that fact had little sway or influence.

The other day, I was in the cafeteria choosing EXACTLY the same thing I eat every day in order to constantly maintain the correct blood sugar. Someone who knew I had just come out of the hospital felt it necessary to criticize me over my choice of lunch food. I know the person meant well, but just once I wish people would just shut the fuck up and leave me alone. I choose what I eat because a) it appeals to me, and b) it works. I don’t want to hear about tofu, soy milk products, modified starches or whatever. It’s bad enough I have to change anything in my life because doctors inform me of what I should or should not do. Having some clueless wannabe interject with naive information is really annoying.

Supreme Court health care decision reveals how clueless mainstream reporters really are

Like a lot of other people, I was waiting on the Supreme Court decision over health care legislation. At the time, I happened to be in the hospital awaiting the decision, but that’s really not a significant factor. However, when CNN, and then Fox News, announced the decision IMMEDIATELY after it was written, I didn’t get very excited. The reason being: I figured they’d probably get it wrong.

And they did. CNN first reported that it was repealed. It wasn’t. Fox News then announced something equally stupid, and they were wrong as well.

The important question is Why did both of them really screw up the decision?

Well, the answer is simple. Reporters write differently than Supreme Court justices. You see, the reporter process is to report the decision first, and then they continue to write the story, filling in relevant facts later. The most irrelevant facts are left for the end, just in case an editor has to snip the end of a story. This way, the important parts of a story remain untouched.

The Supreme Court doesn’t work that way. If they issue a 30 page majority opinion, that means that somewhere on page 17 or 18 you might actually get the decision. Everything else is legalese and details that back up that decision. Quite often, you can read for pages and still have no clue where they’re going with the decision.

I learned this in graduate school when I used to have to write briefs on Supreme Court decisions. There were times when I’d read through the whole thing and still couldn’t tell you what was the decision. When you’re a reporter, you’re expected to be able to figure out that ruling quickly, and what happened was they failed at it. They kept trying to read the first few pages of the brief and basically got lost. So, when they got it completely wrong, it made complete sense.

That’s why I waited. I figured after a couple of hours, someone would actually read through the whole thing and then report what actually happened.

Hospitalization, Changing One’s Ways and How People Still Can’t Communicate

I’ve been debating about writing this topic for a few days now, but I guess enough time has finally passed that it’s possible to at least try to deal with it.

I’m in the hospital today. It’s my fifth day, and the doctors still can’t make a decision on when I might get out. My life kind of hangs on the balance of some numbers on a blood test that gets drawn three times a day, and while it appears to be getting better, it’s not “out of the woods” yet, so no one will even conjecture at the possibilities of me ever leaving this place.

Some explanation is probably necessary. I am a diabetic. I have been one most of my adult life. Normally, I’ve maintained it by diet, exercise, a combination of pills and sacrifices to the Goddess Shania Twain. Over the years, my diet has wavered (not always for the best), exercising became easy to chalk up to “probably tomorrow…” and then “probably next week….”, although The Shania has never had a lack of constant attention and appropriate worship.

One of the drugs introduced into my regiment for dealing with this condition turned out to be a lot more toxic to me than it should have been (or so their theory is…can’t really nail the specialists down on what happened, or is happening, but that’s kind of the premise of the voices that are coming down from their mountain), and it managed to inflame my pancreas and turn off my kidney (or something like that). My first realization of something being wrong was waking up in the middle of the night and finding myself completely disoriented in my own room, unable to figure out how to get into the kitchen (where instinctively I realized I needed something to eat). For two hours, I was stuck in my bedroom because I could neither stand up and would come crashing down very fast every time I tried, nor could I turn the door handle of my bedroom door because in my state it was completely beyond me. After two hours, and breaking down my closet door by accident, thinking it was my bedroom door, I managed to open the door and then spent another fifteen minutes trying to crawl across the floor of my living room to my kitchen. Then I found myself completely unable to open the refrigerator (you know those super-security refrigerators that consist of a door that requires you to just tug on it softly to open it? Yeah, one of those). After awhile, I was able to grab a car of apple juice by flinging my hands at it and throwing it to the ground. Then I drank it down in little guilty sips. 15 minutes later, I started to return to normal again.

Apparently, that kind of alerted the medical community that Duane needed some assistance, and here I am at St. Mary’s Hospital in Grand Rapids, Michigan.

One thing I was always adamant about was that if I ever reached a point where I was forced to have to start taking insulin (instead of pills), most people who know me should expect to read of my untimely demise not soon after. I’ve watched too many people get devastated by this disease, and I always swore that I wouldn’t go down that road. Strange. Now, I’m on it. But that’s a subject for later, obviously.

The thing that’s kind of bugging me right now is this medical establishment behavior of always expecting the patient is going to just buy into the ethical commication “care” response system because they live in it every day. Let me give you an example. One thing I abhor more than anything is pricking my fingers with these little needle devices to check blood sugar. It doesn’t hurt that much. It’s not even that messy. But it’s MY FINGERS. I’m a writer who HATES to do anything to my fingers in this way, and even as I write this blog right now, I am reminded with each and every letter I type that something other than my creative thinking is driving my thought process right now. And it continues to hurt a long time. My whole right hand right now has been pricked so many freaking times that I lost count several days ago. By the time I finish this post, someone will come in demanding that either they prick me, or I do the “brave” thing and prick myself.

Which is the other side of that issue that I wanted to discuss (by the way, someone just came in to prick my finger and has now moved on his way). The main nurse who has been working with me since I’ve been here has adopted a communication schema that has been driving me nuts. For those wondering what I’m talking about, a communication schema is a shortcut set of comments and statements that someone uses to deal with specific situations because a previous encounter using those same schema resulted in positive results. Think of it as a lion hunter who continues to run away from the lion until he picks up a chair and waves it at the lion, causing the lion to back off. Suddenly, he has a tool he can use to make sure that the lion doesn’t eat him. Okay, stupid example, but you probably get the idea.

This nurse, in order to get me to want to prick my fingers, keeps using the same schema of “It’s a horrible disease. It doesn’t care who you are. It’s unfeeling.” And if that doesn’t work, he ramps it up to:  “If not treated, you’ll end up having to come back here under the following circumstances: (fill in gruesome details).”

The problem with schema is that it has to pertain to the individual who it is being used on. If I was some young kid who thought that I could just continue living my life in a wild fashion, and I just wasn’t thinking about the ramifications of such things, his schema works really well. It would make me think. However, that’s not me. Consider what I said earlier. I said that if I ever ended up in this situation, there’s a pretty good chance I’d not be alive much longer. This means that I’m not thinking Bad Outcome From Disease vs. Not Doing Anything but my mathematics of a cost benefit analysis wavers the premise of Not Being Alive vs. Having to Deal With all the Shit. In that context, a reconstituted schema that pertains to the wrong emotions is probably not the one to be focused upon.

I understand the need to preach caring about certain things to people, but you have to at least appeal to the same contextual algorithms that drive each individual’s needs.

The truly sad thing is: I’ve been stuck in the hospital for about five days so I’ve been unable to do anything I enjoy doing. Hopefully, this will end soon and we can see where things go from here.